HomeDementia Action Week: Why Awareness Alone Isn’t Enough

Dementia Action Week: Why Awareness Alone Isn’t Enough

19–25 May

This week marks Dementia Action Week, a vital opportunity to shine a light on a condition that affects millions of lives across the UK. It’s a time for listening, understanding and sharing. But most importantly, it’s a chance to take action.

At MedicAlert, we believe awareness is only the first step. Real change begins when awareness leads to preparation. That’s why we’re encouraging every carer, family member and loved one to take a practical step forward by completing the Herbert Protocol.

What Is Dementia?

Dementia is not a single illness but a collection of symptoms caused by diseases that affect the brain. It often impacts memory, reasoning, communication and the ability to carry out daily tasks. Alzheimer’s disease is the most common cause, followed by vascular dementia, Lewy body dementia and frontotemporal dementia.

Dementia is progressive, which means symptoms get worse over time. It can lead to confusion, disorientation and changes in behaviour, especially in unfamiliar environments. As a result, many people living with dementia are at risk of getting lost or going missing.

Key Facts to Understand

  • There are around 900,000 people living with dementia in the UK. This number is expected to rise to over 1.6 million by 2040.
  • One in three people born in the UK today will develop dementia in their lifetime.
  • 60% of people living with dementia are likely to go missing at some point, often due to confusion, anxiety or a desire to go to a familiar place from the past.
  • The risk of going missing increases in the early and middle stages, when individuals are more mobile but struggling with memory and judgement.

These are not just statistics. Behind every number is a family, a carer, a loved one navigating the challenges of an unpredictable condition.

From Awareness to Action

It’s easy to share a post or wear a badge during Dementia Awareness Week, and while those actions help spread the message, we must go further. Preparedness saves time, reduces risk and brings peace of mind.

This is where the Herbert Protocol becomes essential.

What Is the Herbert Protocol?

The Herbert Protocol is a form designed to help if a person with dementia goes missing. It records key information that the police can use immediately:

  • A recent photo
  • Medical details
  • Places of significance
  • Favourite routes or past addresses
  • Daily routines
  • Triggers and calming strategies
  • Emergency contacts

Having this information ready means that if the worst happens, help can be mobilised faster and more effectively.

Helping You Protect Their Journey

We know the idea of someone you love going missing is difficult to think about. But filling in the Herbert Protocol is an act of care. It shows you’re thinking ahead. It helps emergency services act quickly. And it gives you a plan when everything else feels uncertain.

This week, alongside building awareness, we urge you to take action. Fill in the Herbert Protocol form. Let others in your support network know where it’s stored.

It’s one of the most important things you can do to protect someone living with dementia.

Confidence You Can Rely On

At MedicAlert, we support families and carers with tools that offer reassurance, clarity and peace of mind. Alongside our medical IDs and 24/7 emergency support, the Herbert Protocol strengthens that circle of safety.

Dementia Awareness Week is a reminder of how many people are affected. But it’s also a call to be ready. Because in an emergency, what you do in advance can make all the difference.

Your preparation can save vital time. Your care can guide emergency services. Your action can protect their journey.

Complete the Herbert Protocol today and be ready to support them in the moments that matter most.